Monthly Archives: January 2014

We Could All Use A Little More Of This


Sometimes people are surprisingly awesome.

For instance: the lady I don’t really know from somewhere in the U.S. who sent us an email after reading this blog.  She was touched by Sam’s story and wished she could do something, but living on the other side of the world made it a wee bit difficult. So what did she do?

She gave blood, and committed to doing it regularly. In her words,

Unfortunately living so far away, it will never benefit him directly but you can know that because of your story, someone else will get the transfusion that they need.  And Sam can tell his friends that he helped heal someone from the US.”

How cool is that. I had a pretty good cry when I read that email.

More stuff like this on the news, and maybe people wouldn’t be so depressed.

Just a thought.



Crazy Chemo

Found this little video segment that my Dad took in October, This is the first time we administered Sam’s Chemo pills at home. Before we left the hospital with his pills, the Nurse gave us this big pile of safety gear to use while cutting and administering the pills to Sam. Now, call me crazy, but to me it felt like a little bit of overkill, however it provided a good laugh for us all, and you know what they say about laughter being the best medicine!

I must say though, it does make me shake my head to think that I am supposed to go to such lengths to protect myself from this cytotoxic drug, which I then place in the palm of my six year olds hand and ask him to swallow it.

I reckon it’s time we found a real cure.

Dream Night

I haven’t posted for a while on this blog, we have been quite busy, and Sam has been doing quite well. However, there are still some things that I would like to share, so I might just break them into bite sized posts and see how far I get:)

We go in to Tweed Heads Hospital almost weekly to get Sam’s blood tested, and it is nice that we are getting to know the nursing staff there a bit. One day  after another blood test, we got a call from one of the nurses asking if we would like to go to “Dream Night”, a night at the zoo put on for kids who have serious medical conditions. We figured that would be great, so one evening in early December, after the zoo closed to the public, we gathered with a bunch of other sick children and families, and got to experience our first Dream Night.

The night was put on mostly by volunteers, from what I could tell, and they were all so happy to be there putting smiles on all the little faces. We got a free meal, a photo with a koala, there were animals being brought around that the kids could touch, lots of people dressed up in costumes, face painting, a magic show, free ice blocks…… What can I say, it was an amazing night. So, a big thanks to everyone at Currumbin WIldlife Sanctuary who volunteered their time and resources for that night!

Something I am realising is the importance of giving kids special experiences like this. They have to miss out on so many things that other kids get to do, I think it empowers them to know that they are valuable enough that people would do this just for them.